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Upon request for a comment, the NYS Division of Budget spokesperson Morris Peters issued the following statement: “The Executive Budget maintains the state’s full commitment to the Consumer Directed Personal Assistance Program.
There was a lot of sexual abuse going on from staff to residents, also.”įor many of the protestors, being forced into an institution like Willowbrook is a real possibility, if they no longer can afford or obtain their personal assistants. I got my head kicked into the wall by staff … most of the kids sat in the day room naked, with no clothes on. Quoted on Rooted in Rights, Carabello shared his experiences: “I got beaten with sticks, belt buckles. One of Rivera’s sources was Bernard Carabello, a young man with cerebral palsy who had spent 18 of his 21 years in Willowbrook at the time. In 1972 journalists Geraldo Rivera and Jane Kurtin sneaked into the facility and photographed and documented the conditions the residents were living in. Along the signs that protesters were holding up during the rally, one read “Willowbrook Never Again.” Willowbrook State School opened in October of 1947 originally to house wounded veterans, but Governor Thomas Dewey extended the program to serve those in society who are “feeble-minded” or needing highly specialized care, most of whom were either children or the disabled. The defunding or reduction of a program like CDPA could potentially lead to dire consequences. The proposal calls would treat the program as a Fiscal Intermediaries, which are payroll firms, rather than a home-aide talent agency that puts the power in the consumers’ hands when managing their personal assistants. However earlier this year, the office of Governor Cuomo announced a budget proposal that included a $75 million cut that would directly affect people who use CDPA. Such program prevents the disabled and elderly from being institutionalized or losing custody over their children.Įlderly New Yorkers and people with disabilities demand Cuomo to continue funding CDPA. CDPA is different from other home-aide programs because the consumer has the full responsibility to hire, train, supervise, and– if necessary– terminate the employment of the assistants. This Medicaid-funded program provides services to chronically ill or physically disabled individuals who need assistance with activities of daily living.
On March 7th, Somoza and a crowd of over a hundred people with disabilities, elderly people, and homecare assistants rallied against Governor Cuomo’s proposal to cut funding for the Consumer Directed Personal Assistance (CDPA) program. So both of them need assistance all day long– to have their food cooked for them, to feed them, and even the simplest things, like opening the door, they cannot do that." My one daughter cannot roll over when she’s in bed flat on her back. They’re both quadriplegics, so that means they can’t get out of the bed on their own, they cannot get themselves dressed, they cannot shower. Both girls need assistance with everything. According to the twins’ mother, Mary Somoza, says her twin daughters are severely disabled: “ One of my daughters have a feeding tube, is non-verbal– she communicates through technology.
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